Cycle 3 is underway
We had a great time at home and now we’re back! Mac had his bone marrow aspirate and spinal chemo on Monday and we were admitted for round three on Wednesday. The picture is of Mac after his Monday procedures. We went to our favorite donut shop and each picked out a donut! Mac made the biggest mess! 🙂 He was hoarding all of the sprinkles in his mouth and I eventually had to sweep them out!
The results from the bone marrow are that he is still cancer free which is of course, wonderful. I may have already mentioned that rounds 3 and 4 are more difficult because the dosage of the chemo meds go up. I hate watching his chemo run. The nurse today wore two pairs of gloves when she hooked him up and she didn’t even come in contact with the chemo?! Its really intense medication. But, he takes it like a champ. Today he got an EKG and an ECHO to check his heart function. The chemo meds can affect his heart so they check it to make sure he’s ok.
It sure was nice to get home for a week! One day his ANC was 0 and the next day it was only 100 but we went home! He was crawling and pulling himself up and seemed to really enjoy himself. Until night time. Yikes! It was brutal. He was up every hour or two crying and having the hardest time going back to sleep. All the sleeping skills he had are out the window.
It sure is funny to look around the house and see how different things are. We’ve got alcohol swabs and syringes full of heparin. He’s got a special mouth rinse and medicine that flood the counters. We do line flushes and cap changes and sterile dressing changes. We love being home but because we’re in the thick of treatment, the hospital feels like home too. Its weird to think about not being here.
I can’t say it enough how much I love my baby Mac. The nurse today kept asking me if I wanted to take a break and I finally just told her that I don’t like “taking breaks”. I’m where I want to be. I pray for an uneventful round 3. They say its almost impossible to avoid infection but I have hope.
*today’s little miracle: he didn’t scream during the ECHO. Thank you brown bear brown bear.