There are a lot of nights that I am up more than I sleep. I find myself praying for strength and peace. I am so grateful for my Heavenly Father that comforts me and fills me with all of the patience and energy I need. We really feel his love for our precious baby Mac. Mac is still suffering from internal sores and ear...

I think its safe to say we are all exhausted today. Last night they gave Mac a different med for nausea and it made him crazy! One second he was smiling and the next batting his hands in the air being super agitated. He was babbling and fussing past midnight before he finally fell asleep. Then at 4am the nurse came in and Mac woke up...

Mac finished his IV chemo treatments for this cycle! He had his IT chemo yesterday and it was a tiring day! He isn’t allowed to nurse for 4 hours before his spinal tap and IT chemo. The long story short is that they were running behind because of the snow and “Mac got bumped”. They ended up starting 2 hours later and Mac was...

So Mac’s arm is still big but it is getting smaller!!! The Dr said that when he first saw it he was ready to take a picture of it and put it in a textbook about what a clot looked like. He did say that it is possible that Mac’s body resolved the clot on its own, for now we are just monitoring it....

I wish I could say that today was easy and uneventful but it just wasn’t that kind of day. When Mac woke up I noticed that his left arm was huge. Now, my baby has some pretty sweet squishy arms but today there was a whole extra role in his forearm. As the morning went on it got bigger, bluer, and colder. I kept...